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lynnewesthead
#1 Posted : Tuesday, April 13, 2010 6:09:39 PM Quote
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Joined: 4/13/2010
Posts: 1
Dear all Am just about to start on leflunomide - am a bit nervous and wondered if I could get some advice about what to expect. Am also on MTX. Thanks in advance.
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Julia17
#2 Posted : Tuesday, April 13, 2010 6:18:58 PM Quote
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Joined: 2/18/2010
Posts: 1,098
Location: farningham kent
Hi Lynne

A big welcome to the site !

I started on leflunomide about 8 weeks ago together with hydroxychloroquine about a month earlier. I have managed to come down to 2.5/5mg steroids alternate days now but have just started diclofenac as I gather the lef. hasn t fully kicked in yet. I can t be certain if this was the reason, but when I first started it I had flu like symptoms so now take it just before I go to bed and seemed to do the trick. Hope this has helped you a little.

Love Julia x
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christine_l
#3 Posted : Wednesday, April 14, 2010 5:44:11 PM Quote
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Joined: 12/3/2009
Posts: 59
Location: North Bucks
Hi

I have been on Leflunomide for about 3 years with very little problem, MTX didn't suit me and originally l was on MTX with Sulphasalazine, then Leflunomide and Sulphasalazine and now more recently only leflunomide. I really cant remember but l do think that l felt a bit sick when l first took it but nil else to speak of.

It has been a good drug for me but as with all things RA, we are all different and react differently to the drugs prescribed.

I do hope you find Leflunomide works for you.

Christine xx
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Lylie
#4 Posted : Wednesday, April 14, 2010 6:35:38 PM Quote
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I couldn't get on with Mtx, sulpha. and was eventually changed to Leflunomide...............and haven't really had any problems.

I did lose my appetite (and a LOT of weight !!!!)initially, as it CAN lessen the desire to stuff your face with goodies. I have found it ok, though they have added Plaquenil today as its not as effective now as it was when I started almost three years ago......but that's probably because of other health problems clouding the issue! Good luck, do hope you find it helps!! Lxx
Always be aware that what you do might hurt others........and if it could, do nothing without careful consideration of the consequences
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Rose-B
#5 Posted : Wednesday, April 21, 2010 9:31:45 PM Quote
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Joined: 4/20/2010
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Location: Somerset
hello all

I am waiting for my B P to reduce and then I will be started on the same drug. So I would also be interested how people are getting with it

Rose
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Calmwater22
#6 Posted : Wednesday, April 21, 2010 11:08:19 PM Quote
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Joined: 12/3/2009
Posts: 1,740
Hello Lyn
welcome and all best ive seen alot write postive vibes about leufomide,not had it myself.
but woudlnt mind to try it in future.
take care
Melly
cuddly cats make my world seem so much more fun
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